The PhenX project (consensus measures for Phenotypes and eXposures) is funded by the National Institutes of Health, The National Human Genome Research Institute. The initial phase of the project is complete, and the PhenX Toolkit now includes measures for each of the 21 domains selected by the PhenX Steering Committee. A Working Group of experts was convened for each domain, and a consensus-based process was used to select high priority, relatively low burden and well-established measures. Preliminary measures were vetted with the broader scientific community before final selections were made, resulting in the set of measures that were included in the Toolkit.
The Toolkit includes detailed protocols to ensure that the data collected will be comparable across studies. Investigators who come to the Toolkit when designing or expanding a study can be confident that PhenX measures are high quality, having been validated in previous studies. This is particularly helpful for investigators who want to expand their study’s data collection beyond the primary research focus. We encourage you to provide feedback when you use the Toolkit, so we can ensure that the Toolkit meets the needs of the scientific community.